I'm exhausted and angry and scared.

The pharmacy called me yesterday about a medication that was called in for Ian from the pulmonology specialist. I had no idea about any medication or anything, and I knew it had to do with the second round of blood test results. I called them yesterday and asked for a return call to discuss the medication and the results, but no one called me back.  I called them again this morning since I was going to be on my cell phone and asked them to fax the results and to PLEASE CALL ME since the pharmacy can't fill the prescription due to it not being covered by Ian's insurance.  It is now 1:30 pm and I still haven't gotten a return call! I got the results faxed as requested, and the results are confusing and frustrating for me to figure out. I looked up the medication on my medical CD, and it's for a fungal infection that starts in the lungs and moves throughout the body. The usual duration to take his medication is 3 to 12 months.  I am freaking out because there are other things that this medication can be used for, and none of them are good...

This is the second time that they've sent medication into the pharmacy to fill for Ian without them calling me to discuss it. They are starting to really tick me off!!!!!

The results are in from Ian's blood work. There was a frightening day when there was some miscommunication regarding medications from the pharmacy, but from that I got to have a great conversation with a nurse from the specialist's office.

Ian has a C4 deficiency. What this means is that his body cannot fight off infections like a "healthy" person can, and having a deficiency in C4 (which is the 4th component of complement) means that the infections affect the inflammatory process, i.e., the lungs. While this is not the best of news it is certainly better then a diagnosis of cystic fibrosis, which is the diagnosis we were afraid of! He's now had a second round of blood work done, and we are waiting to see if the C4 issue is the problem itself or if it's a symptom of something larger.

Holy crap.  I was not expecting money to be so tight! I mean, I knew it was going to be, but WOW!

I do have to say though, that it's been easier not doing the things we used to do than I thought it was going to be.  We don't spend a lot of money on much other than eating out anyway, so in regard to not buying stuff it's been easy.  It's hard to break the habit of eating out though; we really enjoy taking the kids to Beef O'Brady's and stuff, and now it's really hard to not just pull in somewhere to enjoy a beer and a sandwich or something.

It's only been a week, I know, but it's been sort of nice having dinner together every night and then hanging out at the pool.  I feel "closer" to my family in a way, and I really like that :-)

We're moved in!  I'm excited, but it's scary too.  We're going to be low on money; so low in fact, that there are going to be tumbleweeds blowing through our bank account.  Rent is due Friday, and so is the car insurance, so I'm not quite sure how we're going to make this work.  Our bills may have to be late for the first time in years until we figure out how to strategically pay things, but I'm sure it's going to work out shortly.  I may have to pick up some extra hours at work too, but at least I can work when I need/want to rather than committing to extra hours.  That's one of many great things about my job!